There are those who believe he should never have been allowed to be born.
He came into this world prematurely with severe spina bifida, Chiari II malformation, hydrocephalus, autonomic dysreflexia, central sleep apnea, dysphagia, hypotonia and paralyzed vocal cords. He would develop chronic lung disease, anemia, kyphosis, knee contractures, osteopenia and so much more.
In layman’s terms, he was paralyzed, except for partial movement of his arms. He couldn’t speak because his vocal cords were paralyzed, nor could he eat or even breathe on his own. His own family can’t remember how many times the ambulance raced him to the hospital to save his life. One doctor called this child “the sickest boy in America.”